EDITORIAL REVIEW
"You have created an incredibly valuable book. As a Professional Patient Advocate, I can tell you the experiences you are sharing through your first-person voice are amazingly common and your solutions are very direct and very accurate. This is information that only comes, unfortunately, from first-hand experience. Your book is like no other on the topic of any kind of cancer-- you combine education with real-life emotion. This is “the bible” on colon cancer from the patient’s perspective. Your e-book serves a vital need. You are helping more people than you will ever know. " (Sheryl Kurland, Patient Advocate, Orlando Patient Advocates)
"I cannot begin to tell you how helpful and meaningful your writing is. My father was just diagnosed with colon cancer stage IV and I’m frantically searching for knowledge to help us with what lies ahead. Thank you for the priceless information (so far no one has even mentioned RFA to us or went through aspects of chemo you’ve pointed out) and the inspiration you’re so generously providing. It is such a help for people in our situation." (daughter of colon cancer patient)
"The web is packed with “inspirational” babble, “survivors” success stories and the like. I praise your effort in publishing a factual, clinical account of what your husband has been through. It helps a lot more than uplifting pats on the shoulder and gives me the chance to explore new alleys in the colon cancer nightmare my mother is facing."( Nuno, son of a colon cancer patient)
"Your book has helped me to understand the pros and cons of the road ahead." (Kaitlyn, colon cancer patient)
PRODUCT DESCRIPTION
Cancer patients learn very quickly that figuring out how “The Medical System” works (and does not work) is often more daunting than the actual cancer treatments themselves. Many discover that their questions far outnumber the satisfactory answers available from their doctors and nurses. The author found herself in this position when her husband of 40 years was diagnosed with colon cancer after emergency surgery for a ruptured colon. It didn’t take long for her to realize that in order to get the kind of excellent care promised by their HMO, she would have to become a virtual medical researcher and dedicated patient advocate as well. This book, based on nine journals of extensive notes recorded on a daily basis, details their four-year journey through the medical maze and all the headaches and heartaches along the way. Much more than one family’s story, it takes a much larger perspective by examining the individual details in order to extrapolate universal truths that apply to all cancer patients: the things your doctor or pharmacist doesn't tell you, how this patient and his wife made the system work for them, side effects that aren't on any labels, cutting-edge technology that gave this patient a precious extra year of quality time, and much more.
The chapter titles in this book tell all:
Why Do Oncologists Underplay or Ignore the Side Effects of Chemotherapy?
Blood Clots and IVC Filters— What Every Cancer Patient Needs to Know
RFA of Liver Metastases— A Veteran Patient’s Perspective
Doing Time in the Hospital— Avoiding Pitfalls and Getting Out Fast
Medical Miscommunication Causes Needless Patient Suffering
Good Doctors Love an Informed Patient
Three Key Questions for a Patient Advocate
Treating Cancer as a Chronic Disease
Living Wills— Just a Starting Point
How to Choose a Truly Excellent Hospice
The result is an examination of all aspects of the cancer journey; not only the physical and medical, but more importantly, the mental, emotional and spiritual. This book was written with the goal of lessening the suffering of countless future colon cancer patients by sharing the experiences and accumulated wisdom of one family.
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